assets.aamds.orgLearning is Hope | Aplastic Anemia & MDS International Foundation

Learning is Hope | Aplastic Anemia & MDS International Foundation ") ") Skip to main content Google Tag Manager Pinterest Instagram YouTube LinkedIn Facebook Twitter Join Us Donate Join Us! IMPORTANT: Guidance for Bone Marrow Failure Patients to Protect Against Coronavirus (COVID-19) » Search form Search Toggle navigation Patients Learn About Your Disease Know Your Treatment Options Control Your Care Resources to Help Find a Specialist Caregivers Caregiving Advice Caring by Patient Type Caring for the Caregiver Resources to Help Professionals Resources MDS Clinical Research Consortium Fund Your Research Professional Conferences Diseases Acute Myeloid Leukemia (AML) Aplastic Anemia Chronic Lymphocytic Leukemia (CLL) Myelodysplastic Syndromes (MDS) Paroxysmal Nocturnal Hemoglobinuria (PNH) Related Diseases Treatments Caring for Yourself Therapies Bone Marrow Transplant Clinical Trials Drugs Education COVID-19 Information Conferences Webinars Podcast Episodes Control Your Care Research Articles FAQs Glossary of Terms Glossary of Drug Names Patient Guides and Fact Sheets Support March for Marrow Patient HelpLine Request Educational Materials Grassroots Fundraising Support Networks Community Events Volunteer AAMDSIF PNH Patient Travel Fund Map of Specialists PNH Patient Emergency Financial Assistance Fund Sign-up Articles Newsstand Stories of Hope "I'm Like You" Patient Stories Research Articles About Us Our 35th Anniversary AAMDSIF Staff Board of Directors Medical Advisory Board Patient Education Council Leadership Awards Financials Code of Ethics Operating Policies Mission Statement Our Impact Donate Guidance for Bone Marrow Failure Patients to Protect Against Coronavirus (COVID-19) As a bone marrow failure disease patient, you are already taking precautions to protect your compromised immune system. With the emergence of COVID-19 you and your caregivers should be especially vigilant to continue this preventive behavior. You Are Not Alone. The Aplastic Anemia and MDS International Foundation is the world's leading nonprofit health organization dedicated to patients diagnosed with bone marrow failure disease. Find the Specialist You Need Here! The Map of Specialists is a working list in progress of bone marrow failure specialists who are seeing new patients for treatment or consultation. AAMDSIF Recorded Webinars Available Online! AAMDSIF records all of our webinars for you to listen to experts in bone marrow failure diseases, and learn more about your disease, possible treatments, or new research! Spring Virtual Conference Materials Now Available! All of the presentations (video and print) are available for download from the Spring Virtual Conference recorded on Saturday, April 25, 2020! Diseases Acute Myeloid Leukemia (AML) Aplastic Anemia Chronic Lymphocytic Leukemia (CLL) Myelodysplastic Syndromes (MDS) Paroxysmal Nocturnal Hemoglobinuria (PNH) Related Diseases Treatments Caring for Yourself Therapies Bone Marrow Transplant Clinical Trials Drugs Education COVID-19 Information Conferences Webinars Podcast Episodes Control Your Care Research Articles FAQs Glossary of Terms Glossary of Drug Names Patient Guides and Fact Sheets Support March for Marrow Patient HelpLine Request Educational Materials Grassroots Fundraising Support Networks Community Events Volunteer AAMDSIF PNH Patient Travel Fund Map of Specialists PNH Patient Emergency Financial Assistance Fund Sign-up How can we help? Education, resources, support services and caring communities await you Patients Managing your health care starts with understanding what's happening to you Learn About Your Disease Know Your Treatment Options Control Your Care Resources to Help Find a Specialist Caregivers Being there for your loved ones means having the tools to do your best Caregiving Advice Caring by Patient Type Caring for the Caregiver Resources to Help Professionals Helping advance bone marrow failure knowledge to optimize patient care Resources MDS Clinical Research Consortium Fund Your Research Professional Conferences Join the AAMDSIF Team in the Search for a Cure! Signing up with AAMDSIF means you will know about new research, new treatments, and new clinical trials and you will have access to the world-class experts in rare blood cancers and bone marrow failure disease. Sign Up Now! Newsstand Find our UPDATE Newsletters, news stories and research summaries in plain English. Haploidentical BMT for severe aplastic anemia with intensive GVHD prophylaxis including posttransplant cyclophosphamide Apr 2020 What's New: Foundation Update Newsletter April 2020 Apr 2020 The Defense Health Research Consortium Letter to US Senate with Cosigners Apr 2020 The Defense Health Research Consortium Letter to US House of Representatives with Co-signers Apr 2020 Defense Health Research Programs Relevance to National Security and Military Families Apr 2020 more… Stories of Hope Meet these extraordinary people and learn more about them and their motivating stories of hope. Veronica Ruiz How a Delay in Treatment nearly Cost her Life - Veronica's Story Ashely Numbers Ashley and Alayna: A Mother's Story Krissy Kobata Confronting Challenges in Finding Matches for Multiracial Patients John Vasquez, Part 2 Updates from John and Isabella! Jill Minden My Encounter with Aplastic Anemia more… Research Articles Browse recent articles, abstracts, and citations from major medical journals. SF3B1-mutant myelodysplastic syndrome as a distinct disease subtype - A Proposal of the International Working Group for the Prognosis of Myelodysplastic Syndromes (IWG-PM) Apr 2020 Haploidentical hematopoietic stem cell transplantation in aplastic anemia: a systematic review and meta-analysis of clinical outcome on behalf of the severe aplastic anemia working party of the European group for blood and marrow transplantation (SAAWP of Apr 2020 Haploidentical BMT for severe aplastic anemia with intensive GVHD prophylaxis including posttransplant cyclophosphamide Apr 2020 more… The Aplastic Anemia & MDS International Foundation The Aplastic Anemia & MDS International Foundation is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndrome (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. The Foundation provides answers, support, and hope to thousands of patients and their families around the world. We are a patient-focused, patient-centered organization, serving patients and families throughout the three phases of bone marrow failure diseases: the life changing phase of diagnosis the life threatening phase of treatment the life long phase of living with a chronic disease Donate. Your help makes it possible to meet patients' needs, hold impactful conferences, develop fresh education programs and fund research for the cures, along with improved treatments until cures are discovered. Amount $50 $100 $500 Other $ Other amount Submit Other ways to give: In Tribute Of Learn more Personal Gifts Learn more Corporate Sponsorship Learn more Invest in Research Learn more help@aamds.org Home | Donate | Diseases | Treatments | Education | Support | Patients | Caregivers | Professionals | Articles | About Us | Privacy Policy | Donor Privacy Policy The Aplastic Anemia and MDS International Foundation (800) 747-2820 | (301) 279-7202 4330 East West Highway, Suite 230 Bethesda, Maryland 20814 U.S.A. A 501(c)(3) organization. Tax ID: 52 1336903 Share. Social media brings us together 24/7. Join our online community where you can report, reflect, reconnect. Twitter Facebook LinkedIn YouTube Instagram Pinterest...